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Kamis, 24 Oktober 2013

The Facts About Sickle Cell Charities

By Kelly Wood


Charity is a term used to describe voluntarily giving help to others who have needs, usually those who are not related to the giver in any way. This is done out of pure kindness. Sickle cell charities are specifically meant to provide both support and aid to those who are suffering with this type of blood disorder that is known to be hereditary. There are charities with this focus all around the world that offer emotional and financial help.

Sickle-cell disease, also called SCD, or sickle-cell anemia, SCA, are the commonly used terms to describe this disorder that is characterized by red blood cells that take an rigid, abnormal, sickle shape, hence the name. The sickling is what decreases the ability of cells to be flexible and can cause many complications. Those who have this are known to have a lowered life expectancy. Still, many treatments are available to allow these individuals to live a comfortable life.

Charities are known to offer a range of services that are entirely free for the persons receiving them. Medical bills of sickle cell patients tend to be extremely high and even unmanageable. With help from fundraisers and drives, these charity groups may be able to earn funds to help cover the medical costs and thus, reduce stress of debt.

There are numerous foundations that intend to bring awareness to this disorder by hosting seminars and events around the world. These are typically non-profit groups that engage in different types of charity initiatives. They usually fight to have more research done on this medical condition.

Volunteers are the individuals who generally run these foundations, fundraisers, charities and other organizations that seek to help the families and those with sickle cell disorders. These charities might also organize therapy groups or hire counselors to work with patients and improve their state of mind. Another form of charity that may be given to those in need is donors. Many people may choose to donate their blood, if applicable, to a program that gives to those in need.

This disease is directly correlated with the blood system of the body. It has been known to result in terrible pain, damage to the tissue and lungs, anemia and strokes. There are thousands of people who live in America and have this issue, and there are also non-Americans who suffer with the same hereditary condition. It is estimated that 90 percent of the 70,000 cases of this in America afflicts people of African descent. There is currently no cure for this issue but it can be manage through transfusions and similar treatments.

There are a lot of ways these groups can help this community. Those who suffer with the disease may be able to better manage it through various procedures, such as: folic acid and penicillin, vaso-occlusive crisis, hydroxyurea, transfusion therapy, malaria chemoprophylaxis, and marrow transplants. In living with this condition, individuals can expect frequent trips to the doctor to ensure they are doing well.

Sickle cell charities exist, like most other non-profit organizations, to provide for people who are unable to provide for themselves. There are many ways in which sufferers of this disease can get help from volunteers and charity groups. Sometimes help comes as financial support. It might also include donation of blood or spreading the word about the disease and encouraging medical research.




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